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 About
RIBSTF
RIBSTF arose from
concerns that Rhode Island patients and their
families receive too little support as they face
the high-stakes decisions that follow the first
suspicion of a brain or spine tumor. They
deserve an outstretched hand if they need one to
adjust to changes wrought by the disease.
The Foundation has joined medical experts, human
service professionals, and researchers with
laypersons whose lives have been touched by
these tumors. Together, we aim to address the
Ocean State’s unmet needs for:
INSPIRATION
We will tell you how other people have survived
and even thrived despite a brain or spine tumor.
Their stories reveal the challenges they faced
and how they overcame them.
INFORMATION
When every moment counts, RIBSTF will offer
information online around-the-clock about tumors
of the brain or spine, treatment options,
research advances, and local resources. Since
knowledge opens the door to sound
decision-making about crucial treatment options,
all of the medical information on our Website
will undergo expert review.
COMMUNITY
The Foundation will create opportunities for
patients and their loved ones to share concerns
as well as solutions with other people who are
dealing with similar problems. They need not
struggle alone.
FINANCIAL ASSISTANCE
When a medical emergency threatens to become a
financial one, RIBSTF plans to link Rhode
Islanders in need with available resources. For
instance, we are working to identify programs
that offer low-cost medical services or
prescription drugs for individuals who lack
health insurance. We also strive to identify
inexpensive solutions to practical problems such
as a lack of transportation to medical
appointments or the need for a wheelchair.
MORE RESEARCH
As RIBSTF grows, it seeks to fund Rhode
Island-based studies that could lessen the harm
caused by these tumors within the state
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